Thursday, May 3, 2012

The Something Big (or part of it, anyway)

I promised you all some big news this week, so here it is! 

First I'll need to give you a little background.

Many of you will remeber that when my youngest child was born he had some health problems and spent several weeks in the NICU and then several months overcoming the issues he had at birth. That experience was SO DIFFICULT for me, even though it was just for a short time. I believe there is nothing in this world harder than watching your child suffer. It changed me, refocused my priorities, and gave me a deeper empathy for parents of sick kids.
 
Two months after my little guy was born, my good friend had a baby grandson. This is his story:
 


 
Jayden Huynh is a seventeen-month-old little boy who has already survived four surgeries--two bowel, one heart, one gastric-- due to a combination of congenital problems, including Hirschsprung's disease and other issues that are still in the process of being diagnosed. Despite the best efforts of his doctors and family, Jayden has failed to gain enough weight to make it to even the 1st percentile. He only weighs 6.6 kilograms (14.5 pounds) and his low weight is affecting his organ's ability to function. His doctors are considering put him on TPN treatment (IV feeding) which carries its own dangers. The greatest risk to survival is sepsis at the site of his IV port, so Jayden's family need to convert a room in their home into a treatment room that can be kept separate and as sterile as possible in order to give him the best possible chance. This will include buying a small refrigerator/freezer to store the TPN, cabinets for storing medical supplies, a changing table for Jayden, a steam cleaning unit to keep the surfaces as clean as possible, and other supplies.

Jayden's family have started a fund to try and raise money to set up this room, and are hoping to hold an auction to make it possible. Because Jayden's grandmother is a writer and an artist, they are hoping to gain donations from people in these industries to auction. Anything useful would be gratefully accepted, whether it be critiques, books, swag, etc. Because of the international nature of the auction, donors would need to be willing to ship items directly to their auction's winner, if it involves goods. We will provide information and links to the donor's websites, etc. along with each auction.
 
The auction is set to begin on June 2 and will probably run for about a week.  We've already had some awesome stuff donated, including agent critiques and phone calls, author critiques, signed books, jewelry and art.  It's going to be amazing. Mark your calendars.
 
If you feel you can donate anything for the auction or pass this along to friends who might want to help, it would be so appreciated. You can email me if you have an item or critique that you'd like to donate at nataliebahm (at) yahoo.com.
 
 If you'd like to help and you have nothing to donate you can always say a prayer, send good wishes to the family, or spread the word!  We have a facebook account, a twitter account, and a blog you can follow, like, retweet, or repost.
 
Jayden is such a brave little boy and his family has been through so much already. I know they're already overwhelmed by thie kindness the writing community has shown. We hope this auction will take a tiny bit of the financial pressure off of them, so they can focus on caring for Jayden.
 
Thank you so much, for taking the time to read this.
 
 
 

6 comments:

Caroline Starr Rose said...

Happy to be a part of this! xo

Wen Baragrey said...

I'm Jayden's super-proud, super-doting (and also, super-young, ahem) Grandma.

I am hoping to write a personal note to all of the donors so far, but in the meantime, I wanted to take the chance to say publicly how incredibly grateful Jayden's family are for Natalie's efforts (and they have been epic), as well as the donations, prayers, good wishes and general combined awesomeness that has been shown so far.

Thank you seems like such an inadequate word at times like this, but thank you, anyway. One of the things that has meant the most to me, personally, so far is the way I've watched some of the worry lift from Jayden's parents' faces. After two years of watching my baby and her baby go through so much, I can't tell you what that means to me.

So, thank you so much to everyone who has offered help so far, whether it be donations or prayers or good wishes. They all mean the world. And of course, a massive, heartfelt thank you to Natalie who is always the very best sort of friend and who has gone far beyond the call of duty with her efforts for the auction.

Wen Baragrey

Karen Amanda Hooper said...

I'm happy and honored to be part of Team Jayden! On my way to help spread the word.

Tricia J. O'Brien said...

I'm happy to spread the word and do anything else I can to help.

Jayden has been through so much and shows such heart, as does his whole family.

Natalie, thank you for doing this. It's truly awesome.

LynNerdKelley said...

I'll be sure to spread the word, too, and continue praying.

Cynthia Chapman Willis said...

My heart breaks for little ones struggling like this--and their families. Count me in to help.